We usually don't do this but this is such a rare case and we are reaching out for help.

It's about our friend's and past client's baby boy. His name is Valentino Ricciotti and was recently diagnosed with OMS, a rare disease/cancer that attacks its own body.  Valen went from being a normal 1 year old, to all of a sudden not being able to walk, shaking constantly with absolutely no control over his body, having 'dancing eyes', crying constantly and not being able to sleep whatsoever because of what this disease those to his brain. 

A treatment that the world's only doctor specialized in the disease is very costly and often not covered by insurance. The treatment costs about $6k a day, and has to be given for a month, then periodically and sporadically for an unknown period of time. His family just started this long journey, and are currently making the most difficult decisions of their lives.

We all know the power of internet and social media, so we wanted to share the website his friends created for donations. You can read the story there and the journal his mother is keeping on this difficult journey.

If you have a second, please share this link. Or donate if possible. Anything helps. We thank you in advance for your consideration.


Posted by Teresa Mihelic HelpDesk on
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